Trying to get to the FUN stuff . . .

Monday is done! yay! We started off bright and early, this was Kyler's position the entire time I was talking to Dr. Franciosi. . . Thank You CiCi for the itouch--G-Force was a hit! I have talked to what I feel like is a whole team of docs already and it's only day 1! After we met with Dr. F we met with the Dietician and will meet with both of them again at the end of the week. Then, we met with someone with the research study --Kyler's symptoms qualify him to be in the study, so we signed the papers so his results can be used for research as well(no money involved, but should help others in the future!) She said that they are hoping to one day be able to diagnose EE without needing biopsies . . .and just be a simple test and Kyler could be a part of them figuring that out!

The Dexa Scan was no biggy, just took a really cool full body xray scan -- we will get the results of that later in the week.

We went to guest services, they switched our hotel for us (we will be "moving" on Tuesday), we found out about attractions, and they gave him a Cincinnati Teddybear . . .



This is Kyler getting ready to be wheeled to OR -- yes, he's watching "G-Force" again. I got to be in the OR with him until he was completely asleep. I held the iphone in front of him while he drifted off to lala land.

This is post-op, eating popsicles of course! He took a while to wake up, he was sleeping sooo hard . . but when he woke up he was ready to get something in his tummy!

more in the tummy . . .

and still MORE in the tummy! Hey, the boy hasn't eaten solid food since SATURDAY! He requested Dominos, and Pop found one!

What did we find out? Not much really, I did get to talk with the doc after the scopes. . . he showed me the pictures he took (pretty cool, I can see this being a share time thing. . . Mrs. Curtis, watch out for some cool pics come next Monday morning!) He said he could tell by looking that the esophogus is "actively inflammed" and that we would be looking at treatment options for that (again . . .end of the week), he also said that the intestines looked okay to him, but they did take biopsies of that as well. We will see what the rest of the week brings us. . . we will be starting some FUN tomorrow!

Tuesday's Schedule: 9:00 Allergy Appt, Skin patch testing to be administered after that, and a 1:00 meeting with a Social Worker. . .then we are free to roam Cincinnati!